Anyone Diagnosed After Colon Surgery? I Developed Ulcerative Colitis After The Surgery And I Read That Can Cause Aiha. | myAIHAteam

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98 questions
Anyone Diagnosed After Colon Surgery? I Developed Ulcerative Colitis After The Surgery And I Read That Can Cause Aiha.
A myAIHAteam Member asked a question đź’­
What Aspects Of AIHA Are You Grateful For And Worried About Lately?
A myAIHAteam Member asked a question đź’­
A myAIHAteam Member

Rick
Thank
you Rick so much. Is Rituxan. What helped you? Are you ok now
We’re you on Prednisone ever?
Cause they keep changing the dosages on Prednisone and it’s like a roller coaster. And… read more

posted January 10
Has Anyone Had Any Experience With Using "Low Dose Naltrexone" Aka LDN To Deal With Warm Autoimmune Hemolytic Anemia?
A myAIHAteam Member asked a question đź’­
A myAIHAteam Member

Hi no. They are only trying Prednisone and it’s not working
It’s going up Hemagloben blood test and then down to #78. Yesterday they gave blood transfusion.

Are you in this Ned now? And if… read more

posted December 30, 2023
I've Been Out Of Work Since September 6 With AHIA That Was Changed To Evans Syndrome 2 Weeks Later.
A myAIHAteam Member asked a question đź’­

Are there any financial resources that anyone can suggest?

A myAIHAteam Member

I am in Canada. Here we have Unemployment Insurance. And if we can’t work we go on it with drs letter on sick leave. I hope this helps. But in States i don’t know.

posted January 1
Hi, From Spain 🙋‍♀️. Someone Has A Son With Evans Syndrome?My Son Has 8 Years Old And He Was Diagnosticated 4 Years Ago.
A myAIHAteam Member asked a question đź’­

Someone with Evans Sindrome?

A myAIHAteam Member

Thanks. He’s doing great now. Rituxan worked and he’s off the Prednisone. It’s a roller coaster but a less frightening one over time. Good luck with your son’s challenge as well!

posted April 16
How Do You Cope With Seasonal Changes And AIHA?
A myAIHAteam Member asked a question đź’­
A myAIHAteam Member

I am trying everything I can to boost my immune system. I will also try our local honey as I noticed someone in our village keeps bees

posted March 27
Has Anyone Tried "Low Dose Naltrexone" To Make The Immune System Less Active In Its Destruction Of Red Blood Cells?
A myAIHAteam Member asked a question đź’­

Research about "Naltrexone" reveals that the use of full strength Naltrexone is a whole different area of treatment than the use of "Low Dose Naltrexone". Some studies show Low Dose Naltrexone (LDN) can be an effective treatment for AIHI.

Looking For Anyone With Blood Type O- Rh -?
A myAIHAteam Member asked a question đź’­
A myAIHAteam Member

I am blood type O.

posted October 30, 2023
If MMF (cellcept) Is Going To Work, How Long Before You Start To See A Result?
A myAIHAteam Member asked a question đź’­
What's One Natural Remedy That's Helped In Managing Your AIHA?
A myAIHAteam Member asked a question đź’­
A myAIHAteam Member

I had Cold AIHI and found that it is due to clumping of Platelets caused by a deficiency of Enzyme G6PD,which is the most common genetic enzyme deficiency.As a result,you cannot take sulfs drugs,which… read more

posted February 7
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