I have had no results from being treated with prednisone and Rituxin. I receive a blood transfusion weekly and IV Magnesium several times a week. I am starting cytoxin in 2 weeks.

I am in Canada. Here we have Unemployment Insurance. And if we can’t work we go on it with drs letter on sick leave. I hope this helps. But in States i don’t know.

Hi lovie Jenn. Ok. So Prednisone is not helping you either cause if your getting Blood transfusion. Like me. Blood transfusion do they help the Hemagloben for you? Jenn???

Cause I had 1 transfusion and they put 1 blood bag. on Friday Dec 29 and I still feel the same like no energy. My dr s appointment is on Thursday 4 Jan. And I have a hard time breathing and I walk like a turtle.
Jenn when I am on Prednisone they did it 3 times
First they gave 50 mg and it had gone up my Hemagloben but after a couple of weeks it went down so they increased my mgs to 60 same thing happened it went up then a week later it went down now they increased to 100 mgs and Is doing the same thing. Up and now went down and they fave transfusion but I hoped transfusion would make me have more energy to walk to breath but it’s going slow. So know I don’t know what to go
If I can I will wait for dr on Thursday but if I can’t wait I will call in.

So Jenn if they are going to change your meds this means the meds from now like Prednisone and Rituxen don’t help???
Ok now they told you Cytoxin they will try on you. Omg i Hope it helps you. And let me know if helps. Please. Thx much
Jenn

Hi. Oh my. I am in Canada. Where are you?

So your AIHA changed to Evans Simdrome.?
Oh. So now what are they going to do about this. Is this worse than AIHA??
Oh my. Please let us know thx much.
And I hope they give you some kind of help for not having a job.
Here in Canada it’s called unemployment insurance
When you had a job they were keeping money for you and now that your not working they pay you back every 2 weeks.
Talk soon
Let us know News
Thx much