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hi Shana, what has been your hemoglobin level? For me, that has been the key value related to transfusions.
When we know that we have anemia, but we don't know which type....which blood test tells us that it is this AIHA?
My Mom and I are both anemic. Hers is due to autoimmune disease inflammation.
I don't yet know why I am anemic.
😀
My Mom has full blown rheumatoid arthritis, Sjogren's, and other health issues including anemia. She has many 'ologists' including hematology and rheumatologist, but all they say is that her anemia they believe to be due to her autoimmune disease, but they don't call it by this specific name AIHA. She was already on Warfarin blood thinners due to A-Fib. She's been told that the R.A. has moved into systemic autoimmune. Mom declined bone marrow biopsy, which for her at age 87 with heart… read more
There is one bone marrow biopsy tray system which is supposed to be significantly better than all the others, but how do we get our physicians to stock it and use it? I will look up the name and link… read more
I have recently learned that I have cold autoimmune hemolytic anemia as well as warm AIHA. Does treatment differ? I have been treated with prednisone, rituximab and am currently taking Azathioprine immunosuppressant. I would like to hear from anyone with a similar diagnosis. No end to the adventure🙈
I am back on medium levels of prednisone as I was melting into a puddle. We are going back to the drawing board as my haematologist team is perplexed. Another bone biopsy, more different blood… read more
What tests should be given to a patient who has autoimmune anemia before having transfusion?
How can the blood transfusion be compatible for a patient with warm hemolytic anemia?
I have chest pain with my shortness of breath. I also have both warm and cold AHIA. Taking Prednisone since 1/10. Had first IV of Rituxin on Wed. 3 more, 1 a week. My hematologist has had good results… read more
Tonight at 7PM (ET), though, Azreen Iqbal, one of our Patient Advisors, will share her recent experience with a splenectomy. (And, of course, I'll have more info regarding the Annual Patient Meeting in March!) To join us, you need to be a member of the wAIHA Warriors Private FB Group:-(Please answer the membership questions and agree to the rules, so we know you're a (human, not a bot) patient with wAIHA or a caregiver!) https://www.facebook.com/groups/waihawarriors
Then you can find the Chat… read more
A description of a member’s experience with a splenectomy would indeed be interesting
Although I appear to be healthy and responding very well to treatment for my WAIHA, my haematologist ruled out… read more
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