Grateful that a course of high dose prednisone appears to be normalizing hemaglobin/bloodwork. Worried that symptoms may recur, if triggered by a future vaccination or otherwise.

Rick
Thank
you Rick so much. Is Rituxan. What helped you? Are you ok now?
We’re you on Prednisone ever?
Cause they keep changing the dosages on Prednisone and it’s like a roller coaster. And then it blood goes down and I would need a blood transfusion.
Just like that one day you get up and you have AIHA. They have done soooooo many tests but all normal.
Rick thx much for your kind words.
Let me know with your experience. Nice day. Bia

So sorry for your struggles. The good news is that treatments are available and that they can bring remission. Rituxan is often used if steroids don’t seem to do the trick. Good luck. Take care of yourself (eat healthy and avoid infections/exposures as much as possible).

Thanks — my son first experienced AIHA after receiving the flu shot and latest Covid shot. Surprised since prior vaccines had not been a trigger. The 80mg was tapered fairly quickly since his numbers all improved well, although after he got down below 10mg his hemolysis and anemia returned, so he’s back up to 40. Hopefully he will find a lasting remission soon (bloodwork tomorrow). He has had different autoimmune blood disorders for many years (ITP and neutropenia), that recur intermittently and are then controlled with effective treatments, but the AIHA is new.

Hi Rick. This is Bia.
I am do sorry of your son having these deseases.
I have them
Like Ever since Covid. And I think also Covid gave me this AIHA What else can it be. Then having this Anemia. ?
And they don’t know where red blood cells are dying. I don’t know what to say.

Your son now on what meds is he on?
Me the Prednisone doesn’t seem to help me. It’s been a year. Feb 2023. They are giving 75 mgs. Prednisone now.
Will see tomorrow what they tell me. Bia