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Hi no. They are only trying Prednisone and it’s not working
It’s going up Hemagloben blood test and then down to #78. Yesterday they gave blood transfusion.
Are you in this Ned now? And if… read more
God Bless all!
When we know that we have anemia, but we don't know which type....which blood test tells us that it is this AIHA?
My Mom and I are both anemic. Hers is due to autoimmune disease inflammation.
I don't yet know why I am anemic.
The blood test that confirms AIHA is the Coombs test. A hematoligist will know that.
You need your hematologist or experienced Doctor to evaluate. I assume you are talking his Hemoglobin? The doc looks at the whole picture in the CBC, CMC, etc and also the meds he is taking.... Like… read more
Does anyone have experience or data on how AIHA may generate or cause Premature Ventricular Contraction (PVC)? My % rate of PVCs has climbed up between 9% and 15%.
Hi. I don’t know this.
Hi my husband was diagnosed September 2022 on his second round of Rituximab what supplements do you advice please he is currently on vitamin D and calcium
i mean, we cant just take vitamins by ourselves because it can cause sickness. i took iron once by myself and i felt like throwing up because it was too much for me and once i took one multivitamin by… read more
Guys i'm lost. I have my appointment with the haematologist after the blood test. Everything started to improve DHL is better, bilirrubin as well, hemoglobin now is 10, b12 also improving since I'm gettint treatment. Levels of iron has dropped a lot, from 87 to 8. Levels of folic acid have dropped as well. The thing is they say I have no aiha, and the diagnosis is: pernicious anemia. Which is caused by an antibody that attacks the parietal cells of the stomach, they're necessary to metabolise… read more
No
I only got the camera down my mouth and they even gave me pics of tests. This Atrophic gastritis. What is it exactly? Cause i feel all the pills we are taking, that’s what is making me nauseous… read more
I have recently learned that I have cold autoimmune hemolytic anemia as well as warm AIHA. Does treatment differ? I have been treated with prednisone, rituximab and am currently taking Azathioprine immunosuppressant. I would like to hear from anyone with a similar diagnosis. No end to the adventure🙈
I also am of the mixed up variety diagnose Jan 2023. 3 months on varying levels of steroids followed with 4 rituxin infusions one week apart. Last labs all was normal except for cold agglutinin level… read more
I amHemolytic anemia , have fluid build up around the lungs ,on antibiotics and have blockage of oxygen from the heart and 2.5 months of no energy . What would you suggest ?
so sorry to hear you are so unwell, I am trying Manuka honey in warm skimmed milk for energy plus have been increasing my exercise daily - mainly walking a bit more each day. Hope something helps you
My Mom has full blown rheumatoid arthritis, Sjogren's, and other health issues including anemia. She has many 'ologists' including hematology and rheumatologist, but all they say is that her anemia they believe to be due to her autoimmune disease, but they don't call it by this specific name AIHA. She was already on Warfarin blood thinners due to A-Fib. She's been told that the R.A. has moved into systemic autoimmune. Mom declined bone marrow biopsy, which for her at age 87 with heart… read more
There is one bone marrow biopsy tray system which is supposed to be significantly better than all the others, but how do we get our physicians to stock it and use it? I will look up the name and link… read more
