Guys i'm lost. I have my appointment with the haematologist after the blood test. Everything started to improve DHL is better, bilirrubin as well, hemoglobin now is 10, b12 also improving since I'm gettint treatment. Levels of iron has dropped a lot, from 87 to 8. Levels of folic acid have dropped as well. The thing is they say I have no aiha, and the diagnosis is: pernicious anemia. Which is caused by an antibody that attacks the parietal cells of the stomach, they're necessary to metabolise the b12 vitamin. I have this antibody was found in the blood test. But I don't know how they tell me I have no aiha when I saw in the results that still I have direct coombs test positive for IgG and C3d. I cannot understand that. For what I know if you have a coombs positive it means you have antibodies destroying your red blood cells. Am I right? Again, I'll visit another haematologist and see what he/she says as those from hospital I don't know but I don't trust. The first one who saw me told me I had aiha and she even wrote it in my history and I have all the results with the diagnosis of aiha so now I'm really really lost. They have sent me to a digestive specialist to do a gastroscopy and biopsy.

I'm Lost | myAIHAteam

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I'm Lost

A myAIHAteam Member asked a question 💭

Guys i'm lost. I have my appointment with the haematologist after the blood test. Everything started to improve DHL is better, bilirrubin as well, hemoglobin now is 10, b12 also improving since I'm gettint treatment. Levels of iron has dropped a lot, from 87 to 8. Levels of folic acid have dropped as well. The thing is they say I have no aiha, and the diagnosis is: pernicious anemia. Which is caused by an antibody that attacks the parietal cells of the stomach, they're necessary to metabolise… read more

posted March 11

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I wish you to get well soon and im glad AIHA is in remission now for you. take care of yourself and have a nice day :).

posted March 14

maybe is because is rare and they don't believe u can have it. i mean, if it showed up on your tests and it was positive it must be true. go to another doctor and see what they tell you. maybe you have this antibody that destroys the b12 but you also have AIHA, everything is possible.

posted March 12

No
I only got the camera down my mouth and they even gave me pics of tests. This Atrophic gastritis. What is it exactly? Cause i feel all the pills we are taking, that’s what is making me nauseous and no appetite during the day. What are your symptoms? Thx much.

posted April 16

did you also get the autoinmune atrophic gastritis?

posted April 2

Hi. Go do the Gastroscope and Biopsy. It won’t hurt. I did mine. And it was negative.
Bia

posted March 14

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