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Hi no. They are only trying Prednisone and it’s not working
It’s going up Hemagloben blood test and then down to #78. Yesterday they gave blood transfusion.
Are you in this Ned now? And if… read more
When we know that we have anemia, but we don't know which type....which blood test tells us that it is this AIHA?
My Mom and I are both anemic. Hers is due to autoimmune disease inflammation.
I don't yet know why I am anemic.
The blood test that confirms AIHA is the Coombs test. A hematoligist will know that.
Guys i'm lost. I have my appointment with the haematologist after the blood test. Everything started to improve DHL is better, bilirrubin as well, hemoglobin now is 10, b12 also improving since I'm gettint treatment. Levels of iron has dropped a lot, from 87 to 8. Levels of folic acid have dropped as well. The thing is they say I have no aiha, and the diagnosis is: pernicious anemia. Which is caused by an antibody that attacks the parietal cells of the stomach, they're necessary to metabolise… read more
No
I only got the camera down my mouth and they even gave me pics of tests. This Atrophic gastritis. What is it exactly? Cause i feel all the pills we are taking, that’s what is making me nauseous… read more
God Bless all!
I have recently learned that I have cold autoimmune hemolytic anemia as well as warm AIHA. Does treatment differ? I have been treated with prednisone, rituximab and am currently taking Azathioprine immunosuppressant. I would like to hear from anyone with a similar diagnosis. No end to the adventure🙈
I also am of the mixed up variety diagnose Jan 2023. 3 months on varying levels of steroids followed with 4 rituxin infusions one week apart. Last labs all was normal except for cold agglutinin level… read more
I amHemolytic anemia , have fluid build up around the lungs ,on antibiotics and have blockage of oxygen from the heart and 2.5 months of no energy . What would you suggest ?
so sorry to hear you are so unwell, I am trying Manuka honey in warm skimmed milk for energy plus have been increasing my exercise daily - mainly walking a bit more each day. Hope something helps you
It came on suddenly over the course of 2 days heamoglobin dropped from 8 to 5 to 3.9 . Along with severe jaundice... obviously emergency admittance into hospital and several tests done.. nothing conculsive yet over 10 transfusions done and they are helping elevate levels up to a 6 or 7... what have your experiences been ? How long were your stays ? Treatments found or causes if any ?
Any thing that could shed alight would be greatly appreciated
I had Jaundice too as not only is Hemoglobin low,but it may be damaged Folate is stored in Hemoglobin,so take it daily with your Docs help.Your DNA is affected and you are VERY sick and at risk for… read more
I had 4 doses of Rituximab 6 months ago. Now my blood work still shows decreased haptoglobin levels. Was/is anyone experiencing something similar? How long did it take for your haptoglobin to reach normal levels? Just so worried that this is a sign of ongoing hemolysis…
Wow Bia, such an experience. I hope you're a little better now. I'm not still on treatment, and my Hb is 8 last time they checked. I went today to visit another doctor for a second opinion and she… read more
My Mom has full blown rheumatoid arthritis, Sjogren's, and other health issues including anemia. She has many 'ologists' including hematology and rheumatologist, but all they say is that her anemia they believe to be due to her autoimmune disease, but they don't call it by this specific name AIHA. She was already on Warfarin blood thinners due to A-Fib. She's been told that the R.A. has moved into systemic autoimmune. Mom declined bone marrow biopsy, which for her at age 87 with heart… read more
There is one bone marrow biopsy tray system which is supposed to be significantly better than all the others, but how do we get our physicians to stock it and use it? I will look up the name and link… read more
