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Last Spring and Summer, I was taking oral Prednisolone and later, due to that drugās side effects, oral Medipred, (an analog of Prednisolone.)
In June, my haematologist suggested that I order Rituximab in the possible future event I suffer a relapse.
I did and I had it on hand in the refrigerator, 4 ampules, under a controlled temperature range of 02 to 08 degrees C.
As you know, Rituximab is a very serious drug given intravenously and only under strict, medical supervision
I was veryā¦ read more
Not a cure (if you learn of one, let us know!), but more than a bandaid/temporary fix in our experience. Prednisone (at least at higher doses and definitely long term), has notable immediate as wellā¦ read more
Hello everyone. I've just been diagnosed with AIHA. I also have b12 deficit, which it seems is not linked. I'm already on treatment with b12. My haematologist sent me to get a tomography done. Already done. Still I won't see her until 11th March. I have extensive blood test on the 7th. Lots of autoantobodies, serology, tumoral markers and so. The tomography shows spleen enlarged and cervical adenopathy. Everything I read it says treatment for AIHA must be instaured immediately. I was diagnosedā¦ read more
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Someone with Evans Sindrome?
Thanks. Heās doing great now. Rituxan worked and heās off the Prednisone. Itās a roller coaster but a less frightening one over time. Good luck with your sonās challenge as well!
I think my Crohns/UC triggers caused/triggers my AIHA
I had colon surgery in April 2022. I got AIHA in September 2022. Went for colonoscopy in July 2023 was diagnosed with ulcerative colitis never had it before the surgery. I think the colitis causedā¦ read more
When we know that we have anemia, but we don't know which type....which blood test tells us that it is this AIHA?
My Mom and I are both anemic. Hers is due to autoimmune disease inflammation.
I don't yet know why I am anemic.
The blood test that confirms AIHA is the Coombs test. A hematoligist will know that.
Wow Bia, such an experience. I hope you're a little better now. I'm not still on treatment, and my Hb is 8 last time they checked. I went today to visit another doctor for a second opinion and sheā¦ read more
Guys i'm lost. I have my appointment with the haematologist after the blood test. Everything started to improve DHL is better, bilirrubin as well, hemoglobin now is 10, b12 also improving since I'm gettint treatment. Levels of iron has dropped a lot, from 87 to 8. Levels of folic acid have dropped as well. The thing is they say I have no aiha, and the diagnosis is: pernicious anemia. Which is caused by an antibody that attacks the parietal cells of the stomach, they're necessary to metaboliseā¦ read more
No
I only got the camera down my mouth and they even gave me pics of tests. This Atrophic gastritis. What is it exactly? Cause i feel all the pills we are taking, thatās what is making me nauseousā¦ read more
Does anyone have experience or data on how AIHA may generate or cause Premature Ventricular Contraction (PVC)? My % rate of PVCs has climbed up between 9% and 15%.
Hi. I donāt know this.
Hi MariaBeecham
I am also taking Folic Acid. How many Mgs of Folic Acid your taking now? What do you mean Your Red Blood cells halved despite having folic acid? K and yours is cold AIHA? I need toā¦ read more
