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Last Spring and Summer, I was taking oral Prednisolone and later, due to that drug’s side effects, oral Medipred, (an analog of Prednisolone.)

In June, my haematologist suggested that I order Rituximab in the possible future event I suffer a relapse.
I did and I had it on hand in the refrigerator, 4 ampules, under a controlled temperature range of 02 to 08 degrees C.

As you know, Rituximab is a very serious drug given intravenously and only under strict, medical supervision
I was very… read more

October 28, 2022
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Answer Summary

Members shared mixed but mostly positive experiences with Rituximab for treating autoimmune hemolytic anemia and related conditions, with... Read more

Members shared mixed but mostly positive experiences with Rituximab for treating autoimmune hemolytic anemia and related conditions, with several describing successful remissions lasting multiple years, minimal side effects beyond occasional fatigue or allergic reactions managed with pre-treatment, and relief from high-dose prednisone dependence. Many members emphasized that Rituximab worked when steroids failed or couldn't be tolerated long-term, though a few noted it had no measurable effect for them and they returned to prednisone or other treatments. A recurring theme was the highly individual nature of treatment response, the importance of detailed record-keeping and open communication with hematologists, and the hope that remissions bring even when members understand they may not be permanent.

A myAIHAteam Member

I have used rutiximab on two occasions. I took rutix infusions for two years during chemo and after while being treated for marginal zone lymphoma. I also had 4 infusions while on prednisone for my WAIHA condition. My lymphoma is in remission, for now.
My wAIHA is not. The rutiximab is a benign medication with little side effects.

October 29, 2022
A myAIHAteam Member

Like many, I tend to engage with these boards when things are in crisis, or discouraging (re:my son, who has AIHA and other autoimmune blood disorders). When in remission, we happily ignore all this. As a consequence, I think negative or discouraging inputs dominate, so I wanted to take a minute to report that the Rituxan infusions went smoothly and triggered a remission and a tapering/cessation of prednisone. Yay!! We know from experience that such remissions may not be permanent, but a return to normal health is worth celebrating every day, and a reminder that treatments keep improving, and do help. Stay positive, and good luck to all.

March 26, 2024
A myAIHAteam Member

Rituximab was not successful for me at all. I am back on prednisone. I had no side effects from it while under treatment or after.

February 14, 2024
A myAIHAteam Member

My daughter did very well with Rituxan infusions she was very sick and still required 6 blood transfusions and high doses of Prednisone to get her hemoglobin from 4.4 to 14 They had just talked to us about Chemotherapy or removing her spleen luckily her levels started to improve about then!

January 10, 2023
A myAIHAteam Member

In the hospital I did not respond to prednisone. I had one rituximab drip and was able to go home in a few days after a modest good response.

December 14, 2022

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Rock Hill, SC

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