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Real members of myAIHAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myAIHAteam Member asked a question 💭

I have cold activated AIHA and in winter it's hell - I feel freezing and in pain all of the time to the point where I can't think straight let alone do anything. Does anyone have any tips for keeping warm and functioning in cold weather? I already wear lots of layers and gloves and hat indoors, hot drinks and hot water bottles etc. all the obvious things. I wondered if there was an 'outside the box' or less obvious method that helps you to keep mobile / reduce the pain?

November 9, 2024
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Answer Summary

Members offered creative tips for staying warm and functional with cold-activated AIHA, going beyond the basics of layers and hot drinks.... Read more

Members offered creative tips for staying warm and functional with cold-activated AIHA, going beyond the basics of layers and hot drinks. Several members recommended USB-charged heated socks, vests, and mittens, battery-powered heated gloves, electric blankets, and heated throws as practical tools that offer warmth without bulk. A recurring theme was finding clever everyday hacks like wearing a double surgical mask outdoors to warm inhaled air, tucking hand warmers into clothing, taking warm showers after coming in from the cold, and asking a doctor to write a letter to get a utility bill discount.

A myAIHAteam Member

There are a lot of great new technology clothing options out there now that will help. I purchased socks, vest and mittens that charge using USB port. They are lightweight and not too expensive.

November 28, 2024
A myAIHAteam Member

i found out that taking a hot shower makes me feel better after i come from the cold. i waited like 30 min but i think i could have done it after 10 min after coming from the city uz i was going out and i came back and i felt kinda tired. so i took a hot shower and i felt better. it doesnt have to be super hot but a decent amount of hot is okay

November 15, 2024
A myAIHAteam Member

In the freezing winter air I wear a mask, a surgical mask because it heats up the air I breathe. And I have warm gloves. Eventually u could get a thermos that keeps hot drinks for a few hours to keep warm. I say I wear a mask but actually I wear two to bounce the air I breathe back in my mask so I don't breathe cold air. Because two layers are more isolating

November 13, 2024 (edited)
A myAIHAteam Member

I have some fleece lined leggings that are warm and probably warmer with thermals under them.

November 12, 2024
A myAIHAteam Member

Get high quality clothes, maybe wool and knits and stuff like that. There are these things in fashion called thermal clothes that goes under your normal clothes, I think these are made of fleece

November 10, 2024

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