Warm autoimmune hemolytic anemia (AIHA) can leave you feeling dizzy, sometimes to the point of feeling like you might fall or pass out.
“I’m constantly dizzy and lightheaded, and I get a racing heart. When I get low on air, I get ‘noodle legs!’” shared a myAIHAteam member.
“I get dizzy spells. I can hardly walk, and I feel like I sleep all the time,” wrote another member.
Dizziness can have many possible causes, including anemia. Here’s what you should know if you’re having trouble finding steady ground while living with AIHA.
Warm autoimmune hemolytic anemia is an autoimmune condition. That means the immune system attacks the body’s healthy cells — in this case, red blood cells.
Normally, red blood cells live for about 120 days. Then the spleen destroys and recycles them.
In people with warm AIHA, antibodies attach to red blood cells, tagging the cells for destruction. This process of red blood cells being mistakenly tagged and destroyed too quickly is called hemolysis. Hemolysis of red blood cells results in anemia.
A drop in red blood cells and hemoglobin can lower how much oxygen gets delivered throughout the body. This is one reason people with warm AIHA may experience episodes of dizziness or feel faint.
Members of myAIHAteam often share what it feels like to live with AIHA.
“I was so dizzy and fatigued while walking the dog for 30 minutes. I had to stop three times and even lie down on a bench until the nausea passed,” wrote one member. “This is not good.”

The symptoms of AIHA can vary depending on how fast the anemia develops and how low hemoglobin levels are. Common anemia symptoms include:
Not everyone with warm AIHA has all of these symptoms. Your symptoms may get better if your condition is well controlled.
Anemia can contribute to dizziness, but it’s important to consider other possible causes, too. Other causes of dizziness may include:
Dizziness can also be related to anxiety, stress, motion sickness, head injuries, and other medical conditions.
Because there are so many possible causes, unexplained dizziness is worth discussing with your healthcare provider. It helps to be as detailed as possible when you describe what dizziness feels like, along with how and when you experience it.
If you suddenly feel dizzy or faint, your first priority should be preventing a fall or injury.
“My AIHA has caused two falls now,” wrote a myAIHAteam member. “In the first fall I broke my tailbone because I fell onto a hard surface, and in the second fall I hit my head.”
“If you’re weak, fatigued, and dizzy, be very careful about walking up and down stairs without an escort,” suggested another member. “Also, be careful in the shower. Have a shower chair and a safety bar in the shower, along with a handheld showerhead, so you can shower sitting down. A fractured hip is the last thing you want to have in the struggle with this illness.”

Don’t try to push through severe dizziness. Sit down somewhere safe or lie down until the feeling passes. When you’re ready to get up, move gradually from lying down to sitting and then standing.
Hold on to something stable. If you need to walk while you feel slightly unsteady, use a sturdy surface for support. Avoid stairs until you feel steady again.
Be sure to avoid driving when you’re dizzy. Dizziness can affect your balance, concentration, and reaction time. It’s not safe to drive or operate machinery while you feel faint or unsteady.
If dehydration may be contributing to your symptoms, drinking fluids may help. But make sure to follow any fluid restrictions or other instructions your healthcare team has given you.
Finally, keep track of your symptoms. This information can help your healthcare team figure out the cause. When you feel dizzy, note:
When dizziness is related to warm AIHA, treating the underlying condition and improving the anemia can help.
Treatment options for AIHA may include:
Your healthcare team may monitor your hemoglobin and perform other blood tests to track whether red blood cell destruction is continuing or whether your anemia is improving.
If you have warm AIHA and notice new or worsening dizziness, let your healthcare team know. They may want to determine whether your anemia has become worse or whether something else is causing the symptom.
Mild, occasional lightheadedness isn’t always an emergency. However, you should have some symptoms checked right away. Seek urgent medical attention if you feel faint and also:
If you’re living with warm AIHA, more severe symptoms can mean your condition is getting worse. It’s important to communicate with your AIHA specialist about any new or worsening dizziness or other symptoms.
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