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Last Spring and Summer, I was taking oral Prednisolone and later, due to that drug’s side effects, oral Medipred, (an analog of Prednisolone.)
In June, my haematologist suggested that I order Rituximab in the possible future event I suffer a relapse.
I did and I had it on hand in the refrigerator, 4 ampules, under a controlled temperature range of 02 to 08 degrees C.
As you know, Rituximab is a very serious drug given intravenously and only under strict, medical supervision
I was very… read more
Not a cure (if you learn of one, let us know!), but more than a bandaid/temporary fix in our experience. Prednisone (at least at higher doses and definitely long term), has notable immediate as well… read more
I have now logged about 14 months of traditional, allopathic treatment since my initial diagnosis of AIHA in February, 2022
The result has been favourable in that I progressed from a haemoglobin level of around 5.0 to close to 12, with major fluctuations in between, then and now
To be honest, I went from transfusions, Prednisolone to Metapred, to tapering off of all drugs completely last August and then back to transfusions last October and finally back to Prednisolone, all in the past 14… read more
So over time prednisolone can cause serious side effects because it is a steroid. So moon face, low levels of hormones, and destruction of antibodies and the immune system are the main issues. If your… read more
I had 4 doses of Rituximab 6 months ago. Now my blood work still shows decreased haptoglobin levels. Was/is anyone experiencing something similar? How long did it take for your haptoglobin to reach normal levels? Just so worried that this is a sign of ongoing hemolysis…
I've had rituxan twice. This first time, and for a relapse. I'm experiencing a relapse and will do another round of rituxan. It has worked wonders for me. There is no cure for this disease. In… read more
Thanks Corrie it's been a great help to me. Hope all goes well for you.
Anyone have experience with patient foundations or grants to help cover costs of Rituxan treatment. Thank you.
My provider contacted the drug company that makes Rituxan. I filled out a financial application and qualified to get it free. I had no insurance at the time. I'm on Medicare now which covers 80%. I… read more
Hi my husband was diagnosed September 2022 on his second round of Rituximab what supplements do you advice please he is currently on vitamin D and calcium
i mean, we cant just take vitamins by ourselves because it can cause sickness. i took iron once by myself and i felt like throwing up because it was too much for me and once i took one multivitamin by… read more
I have recently learned that I have cold autoimmune hemolytic anemia as well as warm AIHA. Does treatment differ? I have been treated with prednisone, rituximab and am currently taking Azathioprine immunosuppressant. I would like to hear from anyone with a similar diagnosis. No end to the adventure🙈
I also am of the mixed up variety diagnose Jan 2023. 3 months on varying levels of steroids followed with 4 rituxin infusions one week apart. Last labs all was normal except for cold agglutinin level… read more
