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Real members of myAIHAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 21
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A myAIHAteam Member

Hi my legs feel heavy constantly last week I couldn’t get out of bed my body felt like lead , I’m always feeling exhausted this has only just started the past month , Contacted my hemotologist still waiting

October 28
A myAIHAteam Member

I share your symptoms CaroleD. Despite Hb level at 11, cannot walk very far, especially uphill. My haematologist has no advice on how to manage these symptoms of pain and muscle weakness. Does anyone in the community have any thoughts?

October 19
myAIHAteam

That sounds really exhausting and frustrating — being stuck at home because of pain and weakness is a lot to deal with.

Muscle soreness and weakness are recognized symptoms of autoimmune hemolytic anemia (AIHA). They're largely linked to your red blood cells not being able to carry enough oxygen to your muscles, which can Show Full Answer

That sounds really exhausting and frustrating — being stuck at home because of pain and weakness is a lot to deal with.

Muscle soreness and weakness are recognized symptoms of autoimmune hemolytic anemia (AIHA). They're largely linked to your red blood cells not being able to carry enough oxygen to your muscles, which can make even simple movement feel like a huge effort.

Some things worth knowing:

- Thigh and leg pain can be more common in cold AIHA specifically
- Fatigue and weakness often go hand-in-hand with this
- Symptoms that limit daily life are a signal worth discussing with your doctor, as treatment adjustments may help

Other myAIHAteam members have shared similar experiences with muscle pain and weakness affecting their mobility and daily routines — so you are definitely not alone in this.

It's really important to bring this up with your healthcare provider, especially if it's getting worse or stopping you from going about your day. There may be options to help manage these symptoms better and improve your quality of life.

September 21

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