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Real members of myAIHAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Just recently diagnosed with Warm AIHA. I also have Hemochromatosis.

A myAIHAteam Member asked a question 💭
Northern Ireland

Has anyone got the two? Does having the warm form mean you should avoid sun holidays?

May 9
 · 
Reactions
A myAIHAteam Member

Thank you so much. I will do as advised. It is a lonely place. People do not understand as the tell me I look well.

May 9
myAIHAteam

First off, welcome to the community — though of course, nobody *wants* to be here, it's a great place to be once you are! A recent diagnosis can feel overwhelming, so it's completely understandable to have lots of questions.

Regarding others having both conditions, while there are myAIHAteam members who mention having Show Full Answer

First off, welcome to the community — though of course, nobody *wants* to be here, it's a great place to be once you are! A recent diagnosis can feel overwhelming, so it's completely understandable to have lots of questions.

Regarding others having both conditions, while there are myAIHAteam members who mention having multiple conditions alongside their AIHA, a specific combination with hemochromatosis hasn't been widely discussed. It may be worth posting on the community feed to connect with others who share your experience. Now, the sun holiday question — good news here! Warm AIHA is called "warm" because the antibodies attack red blood cells at your normal body temperature, not because of sunlight or heat exposure. So sunshine itself isn't the trigger.

The key things to be mindful of with warm AIHA on holiday are general symptoms like:

- Fatigue
- Dizziness
- Shortness of breath
- Irregular heartbeat
- Jaundice

These can be worsened by overexertion or dehydration in the heat, so staying hydrated and pacing yourself is important. Always check in with your doctor before travelling to make sure your condition is stable enough for a trip. Enjoy that sunshine! ☀️

May 9
A myAIHAteam Member

Hi BHarrigan. Wow. I feel for you. Yes. People that have not experienced anything they don’t go in yours or my shoe's, to feel what we are feeling day by day. Be strong and will all of us are going yo get through all this ordeal, God heal us. Amen 🙏✝️✨✨✨🫶

May 20

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