Yes, definitely. Even after the Hb was normal again, all my muscles were affected and extreme weak (holding a phone was hard). Over time only my legs are still bothering me. Not so much weak but exercising was for a long time painful such as walking up/down stairs, getting in/out of chairs. Regular walking was fine, but any exercise that was slighty more intense I could not even keep up for 30 or 60 seconds (I joined an physio sports club and I cannot keep up with the pensioners). For a year now the iliopsoas muscle group is causing problems with walking and sports (dancing). Thanks to lots of practice things are slowly getting better.

Yes, after 3 haemolytic episodes and I am now stable. I had skeletal muscles all over my body affected by the steroids and a year of resistance exercise I am a so much happier but still have periods of tiredness and fatigue frequently. I still find, to my surprise, muscles that do not work well together and the physio gives me exercise to improve those functional changes I identified. On the off days, I just take it easy and still exercise but not strenuously. The fatigue come and goes in days. I asked the doctors why, they did not know. I started off slowly with a book on exercises for the over 50s. and couple of tins of beans for weights. This was brilliant. I walked in 500m lots gradually increasing over time. i wrote all this down so I could see my slow achievements. The idea to get help from an exercise physiologist to get a programme initially then a physio was my idea as the medical people would not advise or even talk about an exercise programme. Those appointments have ben invaluable. I was an unknown quantity with these allied health practitioners so everything was done slowly. This is working for me at present as I have better endurance and stamina in everyday living activities. I am now able to participate in free community classes for walking, and tai chi and exercises.

I did. Is from Prednisone. It was also from dexamethasone cuz 2 weeks of dexamethasone destroyed all my strength for a few months. Then it was from Prednisone and Omeprazole mixed. Now I don't take Omeprazole anymore cuz I have a small dose of Prednisone, 2 pill per day aka 5mg * 2 . 10mg per day total. I have more strength after a year since I discovered the AIHA.

I've noticed my legs getting weaker. I fell trying to get up onto a step a week or so ago. I shall have to be more careful in future. I am due to speak to my consultant, after another blood test, soon. I am keeping a note of my symptoms.

Yes my legs are weak and have problems getting pants or socks, shoes on or off. Standing to do dishes or making something to eat. Getting up from sitting in a chair