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Real members of myAIHAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is anyone here aware of the initial cause/reason of the onset of your AIHA?

A myAIHAteam Member asked a question 💭
Kuching, Malaysia
February 12, 2024
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Answer Summary

Members shared their suspected triggers for autoimmune hemolytic anemia (AIHA), with many pointing to recent viral infections like COVID-19,... Read more

Members shared their suspected triggers for autoimmune hemolytic anemia (AIHA), with many pointing to recent viral infections like COVID-19, pre-existing autoimmune conditions such as Hashimoto's thyroiditis, environmental exposures including Vietnam-era chemicals, or significant physical and emotional stressors like pneumonia, high elevation living, and chronic stress. Several members described AIHA appearing suddenly without warning, preceded only by exhaustion, heart palpitations, or stiffness, while others connected it to factors like cancer treatments, vaccines, or long-standing immune vulnerabilities such as thalassemia trait. A recurring theme was the uncertainty and complexity of pinpointing a single cause, with members acknowledging that a combination of genetic predisposition, environmental toxins, lifestyle factors, and immune system challenges likely contributed to their condition in ways that may never be fully understood.

A myAIHAteam Member

From the answers here, I think I’m going to see a lot of pre-existing conditions of another disease prior to the AIHA.
We all know that pre-existing conditions weakens the natural immune system and it opens up the patient to a plethora of other problems.

I’m sorry for the diagnosis of CLL and truly wish you a favourable outcome. 🙏

February 13, 2024
A myAIHAteam Member

Vietnam Chemical Exposures, but VA does not admit.

February 16, 2024
A myAIHAteam Member

Probably a virus picked up in the Caribbean on a cruise

February 15, 2024
A myAIHAteam Member

Mine showed up completely out of the blue, without any preexisting conditions. It was preceded by months of exhaustion, heart palpitations and very high pulse rate at the end. At about that time, my neck and shoulders were extremely stiff, so I got a massage and blacked out after it.

As far as reasons, I suspect chronic stress, potential environmental factors, toxins deliberately added to food and/or cigs, childhood vaccines, perhaps birth control pills and kind of mindless use of antibiotics in the past... or maybe something genetic... My Mom had a stillbirth before me. According to her, the baby was OK till birth and the doctors contributed to this outcome, which is highly believable, but I have no way of knowing the truth. I do remember some talk about Rh incompatibility, though. I don't think any of us will ever know...

November 4, 2024
A myAIHAteam Member

Like StancuIonela , I took am convinced the COVID vaccine caused mine

August 6, 2025

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