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A myAIHAteam Member asked a question 💭
Riverside, CA
December 11, 2022
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Answer Summary

Members shared mixed experiences with prednisone and energy levels, with some attributing fatigue to the underlying disease rather than the... Read more

Members shared mixed experiences with prednisone and energy levels, with some attributing fatigue to the underlying disease rather than the steroid itself, while others felt the medication depleted their energy or caused jitteriness and sleeplessness. Several members described finding relief at lower maintenance doses and shared practical strategies that helped them feel better, including taking B12, vitamin D3, folic acid, zinc, and Ambien for sleep support. A recurring theme was that individual responses to prednisone vary widely, with some members thriving on low doses for years and others struggling with side effects at higher doses.

A myAIHAteam Member

I have been on low maintenance of prednisone (5mg) for a few years. Keeps things in check. I take D3 2X per day, folic acid 1X per day, HCQ 2X per day, and zinc one per day along with the regular vitamins. Best I have felt in years. Blood numbers are nearly back to normal.

September 10, 2023
A myAIHAteam Member

I think it is not the steroid that makes one fatigued but the disease itself…just sayin..

December 11, 2022
A myAIHAteam Member

Art:

Your above comment is both revealing and reassuring in terms of how long Prednisolone can be used for AIHA.
I have taken a note of your other supplements and it’s certainly worth investigating further.

My two haematologists in two separate countries sharply disagree on this issue.
I am currently taking one, 5 mg tablet of Prednisolone per day for six days a week.
And I feel just fine. My HGB is typically 11 to 12.

We can continue to compare notes.
Very best wishes and please keep in touch!

September 13, 2023
A myAIHAteam Member

I was on varying degrees of prednisone up to 40mg for 4 months. I actually like it because it gave me a lot of energy. Did take ambien for a better nights sleep

June 4, 2023
A myAIHAteam Member

I take B12, and vitamin D3 but I don't think it works well

May 8, 2023

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