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Real members of myAIHAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
98 questions
Rituxan
A myAIHAteam Member asked a question 💭

Anyone have experience with patient foundations or grants to help cover costs of Rituxan treatment. Thank you.

A myAIHAteam Member

My provider contacted the drug company that makes Rituxan. I filled out a financial application and qualified to get it free. I had no insurance at the time. I'm on Medicare now which covers 80%. I… read more

posted November 8, 2023
What AIHA Symptoms Do You Have That You Didn’t Expect?
A myAIHAteam Member asked a question 💭
A myAIHAteam Member

I have had itchy skin and allergies for some time and take anti histamine to control the itching

posted February 6
Has Anyone Tried "Low Dose Naltrexone" To Make The Immune System Less Active In Its Destruction Of Red Blood Cells?
A myAIHAteam Member asked a question 💭

Research about "Naltrexone" reveals that the use of full strength Naltrexone is a whole different area of treatment than the use of "Low Dose Naltrexone". Some studies show Low Dose Naltrexone (LDN) can be an effective treatment for AIHI.

Looking For Anyone With Blood Type O- Rh -?
A myAIHAteam Member asked a question 💭
A myAIHAteam Member

I am blood type O.

posted October 30, 2023
If MMF (cellcept) Is Going To Work, How Long Before You Start To See A Result?
A myAIHAteam Member asked a question 💭
What's One Natural Remedy That's Helped In Managing Your AIHA?
A myAIHAteam Member asked a question 💭
A myAIHAteam Member

I had Cold AIHI and found that it is due to clumping of Platelets caused by a deficiency of Enzyme G6PD,which is the most common genetic enzyme deficiency.As a result,you cannot take sulfs drugs,which… read more

posted February 7
What’s Your Top Survival Tip For Managing AIHA In The Summer Heat?
A myAIHAteam Member asked a question 💭
A myAIHAteam Member

Definitely does in my case. The heat wears me out and causes my skin to rash up.

posted September 10, 2023
Do Injections Of Procrit Help?
A myAIHAteam Member asked a question 💭

This treatment increases the production of red blood cells. Does it help the CAD condition?

A myAIHAteam Member

I have been taking Procrit for one month. So far, it has evened out my HMG levels to 8.6. No need for transfusions this month. My Hemotologist has doubled the amount I will receive with each… read more

posted July 22, 2023
Does Any One Ever Heard Of Behcets Disorder In This Site?
A myAIHAteam Member asked a question 💭

Is this considered AIHA?

A myAIHAteam Member

Why hasn't no one heard of this? If you hav, Please help me by responding. TY

posted August 19, 2023
What Does A Typical Day Look Like For You Living With AIHA?
A myAIHAteam Member asked a question 💭
A myAIHAteam Member

Try not to rush the morning if at all possible.... organic lemon juice in warm water, then a good espresso coffee, couple eggs and toast, meds, Word of God, work out, projects. Find a chair when pain… read more

posted September 10, 2023
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