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Questions & Answers

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Real members of myAIHAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
98 questions
What AIHA Symptoms Keep You Up At Night?
A myAIHAteam Member asked a question đź’­
posted December 19, 2023
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A myAIHAteam Member

My itch was Hives and it went right away.Keep your skin clean.

posted January 2
What's On Your Holiday Wish List That Could Improve Your Life With AIHA?
A myAIHAteam Member asked a question đź’­
posted December 11, 2023
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A myAIHAteam Member

I did not like my health problems spread out on the internet! Take me off everything that you are spreading.

posted December 19, 2023
Anyone Diagnosed After Colon Surgery? I Developed Ulcerative Colitis After The Surgery And I Read That Can Cause Aiha.
A myAIHAteam Member asked a question đź’­
posted November 24, 2023
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What Aspects Of AIHA Are You Grateful For And Worried About Lately?
A myAIHAteam Member asked a question đź’­
posted November 20, 2023
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A myAIHAteam Member

Rick
Thank
you Rick so much. Is Rituxan. What helped you? Are you ok now
We’re you on Prednisone ever?
Cause they keep changing the dosages on Prednisone and it’s like a roller coaster. And… read more

posted January 10
Has Anyone Had Any Experience With Using "Low Dose Naltrexone" Aka LDN To Deal With Warm Autoimmune Hemolytic Anemia?
A myAIHAteam Member asked a question đź’­
posted November 19, 2023
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A myAIHAteam Member

Hi no. They are only trying Prednisone and it’s not working
It’s going up Hemagloben blood test and then down to #78. Yesterday they gave blood transfusion.

Are you in this Ned now? And if… read more

posted December 30, 2023
I've Been Out Of Work Since September 6 With AHIA That Was Changed To Evans Syndrome 2 Weeks Later.
A myAIHAteam Member asked a question đź’­

Are there any financial resources that anyone can suggest?

posted November 8, 2023
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A myAIHAteam Member

I am in Canada. Here we have Unemployment Insurance. And if we can’t work we go on it with drs letter on sick leave. I hope this helps. But in States i don’t know.

posted January 1
Is There An App Or Icon I Can Put On My IPad Desktop For Quick Access Without Going Through A Search Engine?
A myAIHAteam Member asked a question đź’­
posted November 4, 2023
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Hi, From Spain 🙋‍♀️. Someone Has A Son With Evans Syndrome?My Son Has 8 Years Old And He Was Diagnosticated 4 Years Ago.
A myAIHAteam Member asked a question đź’­

Someone with Evans Sindrome?

posted November 4, 2023
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A myAIHAteam Member

Thanks. He’s doing great now. Rituxan worked and he’s off the Prednisone. It’s a roller coaster but a less frightening one over time. Good luck with your son’s challenge as well!

posted April 16
How Do You Cope With Seasonal Changes And AIHA?
A myAIHAteam Member asked a question đź’­
posted October 23, 2023
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A myAIHAteam Member

I am trying everything I can to boost my immune system. I will also try our local honey as I noticed someone in our village keeps bees

posted March 27
Anyone Have Aiha That Came On Suddenly
A myAIHAteam Member asked a question đź’­

It came on suddenly over the course of 2 days heamoglobin dropped from 8 to 5 to 3.9 . Along with severe jaundice... obviously emergency admittance into hospital and several tests done.. nothing conculsive yet over 10 transfusions done and they are helping elevate levels up to a 6 or 7... what have your experiences been ? How long were your stays ? Treatments found or causes if any ?

Any thing that could shed alight would be greatly appreciated

posted October 8, 2023
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A myAIHAteam Member

I had Jaundice too as not only is Hemoglobin low,but it may be damaged Folate is stored in Hemoglobin,so take it daily with your Docs help.Your DNA is affected and you are VERY sick and at risk for… read more

posted February 7
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