Questions & Answers

Last Spring and Summer, I was taking oral Prednisolone and later, due to that drug’s side effects, oral Medipred, (an analog of Prednisolone.)

In June, my haematologist suggested that I order Rituximab in the possible future event I suffer a relapse.
I did and I had it on hand in the refrigerator, 4 ampules, under a controlled temperature range of 02 to 08 degrees C.

As you know, Rituximab is a very serious drug given intravenously and only under strict, medical supervision
I was very… read more

I have now logged about 14 months of traditional, allopathic treatment since my initial diagnosis of AIHA in February, 2022
The result has been favourable in that I progressed from a haemoglobin level of around 5.0 to close to 12, with major fluctuations in between, then and now
To be honest, I went from transfusions, Prednisolone to Metapred, to tapering off of all drugs completely last August and then back to transfusions last October and finally back to Prednisolone, all in the past 14… read more

I have recently learned that I have cold autoimmune hemolytic anemia as well as warm AIHA. Does treatment differ? I have been treated with prednisone, rituximab and am currently taking Azathioprine immunosuppressant. I would like to hear from anyone with a similar diagnosis. No end to the adventure🙈

How long have you been taking oral Prednisolone and at what dosage, Mg./day?
What does your schedule of decreasing dosage look like over time?
And what results have you achieved with the Prednisolone in terms of haemoglobin levels and overall wellness?
Any side effects?

Is there anywhere in Branson or close vicinity to get paid for research I am currently unemployed and fighting for disability

When we know that we have anemia, but we don't know which type....which blood test tells us that it is this AIHA?
My Mom and I are both anemic. Hers is due to autoimmune disease inflammation.
I don't yet know why I am anemic.

Tonight at 7PM (ET), though, Azreen Iqbal, one of our Patient Advisors, will share her recent experience with a splenectomy. (And, of course, I'll have more info regarding the Annual Patient Meeting in March!) To join us, you need to be a member of the wAIHA Warriors Private FB Group:-(Please answer the membership questions and agree to the rules, so we know you're a (human, not a bot) patient with wAIHA or a caregiver!) https://www.facebook.com/groups/waihawarriors
Then you can find the Chat… read more

Does anyone have experience or data on how AIHA may generate or cause Premature Ventricular Contraction (PVC)? My % rate of PVCs has climbed up between 9% and 15%.