My Question For The Team: Has Anyone Here Had Any Actual Experience As A Recipient Of Rituximab Intravenous Infusion? | myAIHAteam

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My Question For The Team: Has Anyone Here Had Any Actual Experience As A Recipient Of Rituximab Intravenous Infusion?
A myAIHAteam Member asked a question 💭

Last Spring and Summer, I was taking oral Prednisolone and later, due to that drug’s side effects, oral Medipred, (an analog of Prednisolone.)

In June, my haematologist suggested that I order Rituximab in the possible future event I suffer a relapse.
I did and I had it on hand in the refrigerator, 4 ampules, under a controlled temperature range of 02 to 08 degrees C.

As you know, Rituximab is a very serious drug given intravenously and only under strict, medical supervision
I was very… read more

A myAIHAteam Member

Not a cure (if you learn of one, let us know!), but more than a bandaid/temporary fix in our experience. Prednisone (at least at higher doses and definitely long term), has notable immediate as well… read more

posted 2 days ago
What Experience Have Members Here Had With The Use Of Oral Prednisolone?
A myAIHAteam Member asked a question 💭

How long have you been taking oral Prednisolone and at what dosage, Mg./day?
What does your schedule of decreasing dosage look like over time?
And what results have you achieved with the Prednisolone in terms of haemoglobin levels and overall wellness?
Any side effects?

A myAIHAteam Member

Hi Wendy. I am happy for you. But you still have the AIHA ???
Wendy what is the CLL???? Please
Thx much.

posted January 8
How Do You Cope With Seasonal Changes And AIHA?
A myAIHAteam Member asked a question 💭
A myAIHAteam Member

I am trying everything I can to boost my immune system. I will also try our local honey as I noticed someone in our village keeps bees

posted March 27
What’s The One Thing That's Helped You Most With Fatigue?
A myAIHAteam Member asked a question 💭
A myAIHAteam Member

Cat's Claw Tincture by Natural Answer

posted December 14, 2023
Has Anyone Added Vitamins Or Supplements Into Your Daily Routine Along With Ur Meds? Wondering If Anything Helps.
A myAIHAteam Member asked a question 💭
A myAIHAteam Member

Folic acid, calcium magnesium, Vitamin D3, B12, Biotin, multivitamin

posted September 14, 2023
Taking The Steriod Pill. Anyone Else Have Such Low Energy Taking The Prednisone?
A myAIHAteam Member asked a question 💭
A myAIHAteam Member

Art:

Your above comment is both revealing and reassuring in terms of how long Prednisolone can be used for AIHA
I have taken a note of your other supplements and it’s certainly worth… read more

posted September 13, 2023
What Lifestyle Changes Have You Made Since Becoming Diagnosed?
A myAIHAteam Member asked a question 💭
A myAIHAteam Member

Knowing what to commit to and keeping things simple and flexible. Reducing stress is a big one for me. Working out at the gym with a 30-50 minute stationary bike and circuit weight lifting 12-20… read more

posted September 10, 2023
I'm Lost
A myAIHAteam Member asked a question 💭

Guys i'm lost. I have my appointment with the haematologist after the blood test. Everything started to improve DHL is better, bilirrubin as well, hemoglobin now is 10, b12 also improving since I'm gettint treatment. Levels of iron has dropped a lot, from 87 to 8. Levels of folic acid have dropped as well. The thing is they say I have no aiha, and the diagnosis is: pernicious anemia. Which is caused by an antibody that attacks the parietal cells of the stomach, they're necessary to metabolise… read more

A myAIHAteam Member

No
I only got the camera down my mouth and they even gave me pics of tests. This Atrophic gastritis. What is it exactly? Cause i feel all the pills we are taking, that’s what is making me nauseous… read more

posted 1 day ago
What Aspects Of AIHA Are You Grateful For And Worried About Lately?
A myAIHAteam Member asked a question 💭
A myAIHAteam Member

Rick
Thank
you Rick so much. Is Rituxan. What helped you? Are you ok now
We’re you on Prednisone ever?
Cause they keep changing the dosages on Prednisone and it’s like a roller coaster. And… read more

posted January 10
In What Ways, If Any, Has Your AIHA Affected How You Consume Alcohol?
A myAIHAteam Member asked a question 💭
A myAIHAteam Member

I very occasionally have wine 🍷 or champagne 🍾 but it’s always in very small quantity.
Generally speaking, I would recommend steering clear of alcoholic beverages while taking Prednisolone.

posted September 12, 2023
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