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Real members of myAIHAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone else taking cellcep?

A myAIHAteam Member asked a question 💭
Cantwell, AK
July 14
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A myAIHAteam Member

Been on cellcept about 3 months and it’s really working well for aiha but side effects have been pretty awful. Only drug I’m on -started at 2000 mg and I got so depressed I could hardly function. Finally went down to 1500 mg and tolerating it better. Very tired most of the time and still a lot of depression hemoglobin up to 12.

August 14
A myAIHAteam Member

I began Mycophenolate Mofitil treatment on May 11, 2026 to replace the Prednisolone I’ve been taking for over 4 years for my warm AIHA. I’m now down to 15 Mg. of Prednisolone per week and recently increased my MMF on July 28th to 1000 Mg. daily, up from 500 Mg. daily. So far, no side effects.

My HGB has been fluctuating wildly. It was down to 10.7 on July 24th from 11.6 a month earlier.

My haematologist says my other blood panel values are acceptable and it’s still too early to evaluate the efficacy of the MMF but we’re both hopeful. I generally feel okay.
Over the past few months, I posted comments on my experience with MMF and I’m keen to know how others are doing with it!
Please share! 🙏

August 6
myAIHAteam

Are others with AIHA also taking CellCept (mycophenolate mofetil)?

CellCept is sometimes used as a second-line or steroid-sparing treatment for autoimmune hemolytic anemia, typically when first-line treatments like steroids haven't worked well enough on their own.

Some things worth knowing about CellCept in the context of Show Full Answer

Are others with AIHA also taking CellCept (mycophenolate mofetil)?

CellCept is sometimes used as a second-line or steroid-sparing treatment for autoimmune hemolytic anemia, typically when first-line treatments like steroids haven't worked well enough on their own.

Some things worth knowing about CellCept in the context of AIHA:

- It works by suppressing the immune system to reduce the attack on red blood cells
- It's often used alongside or to help reduce reliance on corticosteroids
- It can take several weeks to months to show its full effect
- Because it suppresses immunity, there's an increased risk of infections, so it's important to flag any signs of illness to a doctor promptly

Many myAIHAteam members have shared experiences with CellCept — some finding it helpful in managing their condition, others navigating side effects like nausea or fatigue.

It's always a good idea to discuss how CellCept is working (or not) with a hematologist, especially if anything feels off. Everyone's response to it can be a little different!

July 14

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