Diagnosed Nov 24 treated with transfusions, steroids then Rituximab. Everything back to normal now (5 months after Rituximab) but I’m worried about recurrence.
Hi
Diagnosed in june. Finished my treatment in November 2024, went back to work in April 2025. The hematology doctor told me that recurrence could be 2 years maybe 5 years, or longer.
Thanks for this. Because they’re not 100% sure what caused it, it’s difficult to know how likely a recurrence is. Most likely cause is lymphoma they found with bone marrow biopsy, but it’s apparently “indolent” - just hope it stays that way!
You will probably be ok for a year.
Anything longer than that is luck.
Rituximab works for about 6 months. Than is only the question how fast will your stupid immune system start to attack your red blood cells again.
Thanks Cynthia. I did ask my consultant but I guess it’s a bit like asking “how long is a piece of string “ especially when they’re not sure of the cause!