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Tonight at 7PM (ET), though, Azreen Iqbal, one of our Patient Advisors, will share her recent experience with a splenectomy. (And, of course, I'll have more info regarding the Annual Patient Meeting in March!) To join us, you need to be a member of the wAIHA Warriors Private FB Group:-(Please answer the membership questions and agree to the rules, so we know you're a (human, not a bot) patient with wAIHA or a caregiver!) https://www.facebook.com/groups/waihawarriors
Then you can find the Chat… read more
A description of a member’s experience with a splenectomy would indeed be interesting!
Although I appear to be healthy and responding very well to treatment for my WAIHA, my haematologist ruled out the possibility of a splenectomy due to my age.
A zoom chat would be interesting too. However from my end, there’s a couple of problems:
I live in time zone GMT +8 which means I’m 13 hours ahead of eastern standard time in the US, although there’s certain times during the 24 hour day, (like now), it could still work.
Regarding your wAIHA Warriors Private FB Group. ……
I dropped out of Facebook several years ago because of their rampant, out-of-control censorship policies.
Best wishes!
Thank you so much! This chat was so helpful and supportive.
What is the average length of time between finishing steroids and recurrence occurring if it occurs?
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